Traveling with lupus doesn’t have to be out of reach. With the right preparation and mindset, you can explore the world (or even just a new city) while protecting your health. Whether you’re planning a beach getaway, a mountain escape, or a trip to visit family, here are some travel tips to help you enjoy your journey without triggering a lupus flare.
- Talk to Your Doctor First: Before booking anything, check in with your rheumatologist or primary care provider. Ask about:
- Any needed vaccines or medications (especially for international travel).
- Adjustments to your current treatment plan.
- What to do if you have a flare while away.
- Plan Rest Days Into Your Itinerary: People with lupus often experience fatigue, so don’t overbook your schedule. Instead of squeezing in five activities in one day, choose one or two and allow for rest in between. It’s okay if your vacation looks more like “slow travel”—your health comes first.
- Pack Smart (and Safe): Your carry-on should include:
- All medications (in original containers, clearly labeled).
- A list of medications and dosages.
- A refillable water bottle to stay hydrated.
- Healthy snacks (especially if you’re on a specific anti-inflammatory diet).
- A wide-brimmed hat, UV-protective clothing, and high-SPF sunscreen—lupus can make you more sensitive to sunlight.
- A lightweight blanket or shawl for temperature regulation on planes or buses.
- Watch Your Diet & Hydration: It’s easy to let routines slip on vacation, but sticking to your usual eating and hydration habits will help prevent inflammation and fatigue. If you’re sensitive to gluten, dairy, or processed foods, try to plan meals or pack snacks accordingly.
- Avoid Prolonged Sun Exposure: Photosensitivity is a big concern for many with lupus. Wear mineral sunscreen daily (even on cloudy days), and seek out shaded areas. UV-protective sunglasses and long sleeves can go a long way in preventing a flare.
- Listen to Your Body: If your body tells you to rest, listen. You don’t have to see everything to have a meaningful trip. Let go of the pressure to keep up with others, and honor your limits.
- Know Emergency Info: Save emergency contacts in your phone and write them down on a card in your wallet. Include your doctor’s info, medications, and any allergies. Know how to contact emergency services in the country you’re visiting.
- Consider Travel Insurance: Look for a policy that covers pre-existing conditions, trip cancellation, and emergency care. It’s worth the peace of mind.
- Stay Calm and Flexible: Lupus can be unpredictable, and travel doesn’t always go as planned. That’s okay. If you need to skip an outing, rest at the hotel, or head home early, it is much easier to take a break than overexert yourself and need longer to recover.
Living with lupus doesn’t mean you can’t enjoy travel. It just means you’ll travel differently—with intention, preparation, and self-compassion. The goal isn’t to push through your symptoms but to embrace experiences that leave you feeling enriched, not exhausted.
