The heat doesn’t affect everyone the same. For people living with lupus, heat waves can bring more than just discomfort—they can trigger flares, worsen fatigue, and make daily life harder to manage.
With record-high temperatures becoming more common, it’s important to talk honestly about how heat interacts with chronic illness—especially lupus.
Lupus is an autoimmune disease, which means the body’s immune system attacks healthy tissues. The symptoms vary person to person, but common ones—like joint pain, fatigue, and skin sensitivity—can get worse in extreme weather.
Here’s how high heat makes things more difficult:
- Fatigue increases: When your body works harder to stay cool, it drains energy—something already in short supply for many with lupus.
- Flares may be triggered: Heat and sun exposure can cause skin rashes, inflammation, or joint pain to return or worsen.
- Dehydration becomes more likely: Some lupus medications, like diuretics or immunosuppressants, can increase fluid loss.
- Photosensitivity is a concern: Many people with lupus react strongly to UV exposure, and heat waves usually come with intense sunlight.
What to Watch For: During heat waves, it’s worth paying closer attention to how you feel. Even mild symptoms can be a warning sign that your body needs rest or cooling down.
- Dizziness or feeling faint
- Muscle cramps
- Nausea or headaches
- Fast heart rate
- Skin changes (rash, redness, swelling)
- Deep fatigue that feels sudden or different from usual
Ways to Cope in the Heat: Managing lupus in high heat isn’t about doing everything perfectly—it’s about making small adjustments that reduce stress on your body.
Here are some basic things that can help:
- Drink water regularly: Not just when you’re thirsty. Dehydration can sneak up quickly in the heat.
- Stay inside during peak sun hours (10 a.m. – 4 p.m.) if possible. If you need to go out, wear light, protective clothing and sunscreen.
- Keep your environment cool: Use fans, close blinds, and avoid using the oven or stove if it heats up your space.
- Rest more often: You’re not lazy—your body is working hard. Heat stress is real and takes a toll.
- Check your medications: Some drugs can increase sensitivity to heat or sunlight. If you’re unsure, ask your doctor or pharmacist for guidance.
There’s no one-size-fits-all approach to managing lupus in the heat. Some people are affected more than others. But if you’ve noticed a pattern—more pain, fatigue, or skin issues when it’s hot out—you’re not imagining it.
Extreme weather is harder on bodies already navigating chronic illness. Giving yourself space to slow down, cool off, and prioritize rest isn’t just self-care—it’s survival.
You’re allowed to take it easy.
