Living with lupus, an autoimmune disease, involves navigating flare-ups. During these periods, symptoms intensify, significantly impacting daily life. Understanding the symptoms and effective management strategies can help patients better cope with these challenging times. In this post, we’ll dive into the common symptoms of lupus flare-ups and explore practical tips for managing them.
A lupus flare-up, or flare, is a period when the symptoms of lupus become more severe or new symptoms appear. These flares can vary in intensity and duration, ranging from mild to severe and lasting from days to weeks. Identifying the triggers and early symptoms of a flare is crucial for managing the condition effectively.
Common Symptoms of a Lupus Flare-Up
Before we jump into the common flare-up symptoms I wanted to note why tracking everyday symptoms and lifestyle factors is so important. Most flare-up symptoms are just heightened everyday lupus symptoms. Tracking symptoms and their severity every day can immediately show you not only when a flare-up happened but also allows you to look back at lifestyle choices/environmental factors that could have proceeded a flare like for example diet, emotional management, or hot weather. Click here to check out our free medical binder printables! Now let’s look at the flare-up symptoms of lupus.
Fatigue: One of the most common symptoms, fatigue during a flare can be overwhelming. It goes beyond normal tiredness and often makes simple daily tasks exhausting.
Joint and Muscle Pain: Lupus often causes inflammation, leading to joint pain and stiffness, especially in the morning. Muscle pain and weakness can also be prevalent.
Skin Rashes: The distinctive “butterfly” rash across the cheeks and nose is a hallmark of lupus. During a flare, skin rashes can worsen or new ones may appear, often exacerbated by sun exposure.
Fever: Low-grade fevers are common during flares. These fevers can be persistent and may not be linked to an infection.
Hair Loss: Many lupus patients experience hair thinning or hair loss, which can worsen during a flare. Make sure to check out our blog post on “Lupus hair loss”!
Swelling: Inflammation can lead to swelling in various parts of the body, including the legs, feet, hands, and around the eyes.
Chest Pain: Pleuritis (inflammation of the lining of the lungs) or pericarditis (inflammation of the lining around the heart) can cause sharp chest pain, particularly during deep breaths.
Cognitive Issues: Flares can affect mental clarity, leading to difficulties with memory, concentration, and confusion, often referred to as “lupus fog.”
Gastrointestinal Problems: Some patients experience nausea, vomiting, and abdominal pain during flares.
Photosensitivity: Increased sensitivity to sunlight is common, leading to rashes or exacerbating other symptoms.
Disclaimer:Ā All content and information on this website including our programs, products and/or services is for informational and educational purposes only, does not constitute medical, psychological or health advice of any kind and we do not warrant that the information presented herein is free of any errors or omissions. You should not use any information on our site in place of professional medical help. We are only sharing our experiences.
Managing Lupus Flare-Up Symptoms
Managing a lupus flare-up is going to look different for everyone. However, there are some standard protocols such as removing known triggers. Getting to look at someone else’s flare-up management and standard protocols can help you craft your own management plan. Make sure to work with your doctor to create a flare plan that is best for you!
Rest and Sleep: Ensure you get plenty of rest. Quality sleep helps reduce fatigue and manage pain. Establish a regular sleep routine and create a restful environment.
Anti-inflammatory diet: Diet has been shown to directly affect symptoms and severity of lupus symptoms. An anti-inflammatory diet has been shown to work best with Lupus patients so during a flare itās extra important to eat foods that reduce inflammation and work with your body. Avoiding foods that can trigger inflammation, such as processed foods and sugary snacks is wise while in a flare. Always talk with your doctor to find a flare plan and diet that works best for you. Below I have listed foods that are known to reduce inflammation and foods that cause inflammation.Ā
Stress Management: Stress can trigger or exacerbate flares. Practice stress-reducing techniques such as yoga, meditation, deep breathing exercises, or engaging in hobbies you enjoy. Make sure to check out our post on “Stress and Autoimmune diseases” to learn more about the effect stress has on Autoimmune diseases like Lupus.
Regular Exercise: Low-impact exercises like walking, swimming, or yoga can help maintain joint flexibility and reduce stress. Always consult your doctor before starting any new exercise routine.
Sun Protection: Use broad-spectrum sunscreen with at least SPF 30, wear protective clothing, and avoid direct sun exposure during peak hours to manage photosensitivity. I love to wear SPF clothing to give my skin an extra layer of protection. I’ve made an Amazon list on our storefront filled with all of my favorite affordable SPF wear. Check it out by clicking here!
Hydration: Stay well-hydrated by drinking plenty of water. Proper hydration supports overall health and can help manage symptoms. Check out our post on “Lupus and hydration” if you haven’t already!
Monitor Symptoms: Keep a symptom diary to track flare patterns and identify potential triggers. This information can be invaluable for your healthcare provider in adjusting your treatment plan. Check out our free medical binder printables by clicking here! Once you plug your email in you will receive the password to the resource library in your inbox. From there, you have access to our 20+ free printables!
Support Network: Connect with support groups, either in-person or online. Sharing experiences and advice with others who understand your condition can provide emotional support and practical tips. Social media makes finding a support network easier than ever. Apps like TikTok, Instagram, and Reddit are a great place to start if you’re looking for a community to share your experiences with.Ā
When to Seek Medical Attention
Talk with your doctor and make a flare-up plan. This can let you know how to personally approach your flare-ups. Your doctor may want to you notify them if you believe you are in a flare-up. It is best to communicate proactively so you know what to do! While many flare symptoms can be managed at home, certain signs warrant immediate medical attention. Contact your healthcare provider if you experience:
- Severe chest pain or shortness of breath
- High fever (above 100.4Ā°F or 38Ā°C) not controlled by medication
- Significant changes in vision or severe headaches
- Persistent vomiting or severe abdominal pain
I write more about my healing journey to living a symptom-free life these days. But Having detailed posts about flare-ups, what to expect at doctor’s appointments, how someone else manages symptoms, products that are good for specific symptoms, etc. Would have been so helpful and made me feel seen when I was at my sickest. I write these posts mainly for my 16-year-old self who felt very alone and scared when I first got diagnosed with lupus. If youāre interested in learning more about my healing journey click here!
Lupus flare-ups can be challenging, but with the right knowledge and strategies, you can manage your symptoms effectively. Stay proactive in your care, communicate openly with your healthcare team, and take advantage of the support systems available to you. Make sure to check out our other Lupus-related post that will be linked below!
Lupus related post to check out:
