As the new school year approaches, students with lupus and their families face unique challenges. Balancing academics, social life, and health can be daunting, but with careful planning and support, students with lupus can thrive. Hereās a guide to help you navigate the back-to-school season with confidence.
Each person’s journey with Lupus is different which means everyone will have their own copy strategies in this post I wanted to share my guide for navigating situations with health conditions in mind. This is just what works for me. By sharing my gameplan this can help you get an idea of where to start!
Understanding Lupus
Lupus is a chronic autoimmune disease that can cause inflammation and pain in any body part. Common symptoms include fatigue, joint pain, skin rashes, and fever. Because symptoms can flare and remit, itās essential for students with lupus to manage their condition proactively.
Preparing for the School Year with Lupus
Communicate with the School: It’s essential to notify your school for many reasons like avoiding situations where you (or your child) may be put in an advocate and explain on-the-spot position. For example, when I went to public school many days my science teachers and writing teachers would bring the class outside to a river near the stadium of my school. Moving class outside entailed a 10-minute walk through a cut-through trail, sitting out in the hot sun, and we were not allowed to bring bags, etc. If you or your child is already feeling like they are on the edge of a flare this hypothetical situation would not be in their best interest because the sun and physical exercise are two triggers many people with lupus. Situations like the one above were very common where I went to school and you would not be allowed to not go unless you had already spoken with your teacher and made arrangements.
- Schedule a meeting with school staff (teachers, school nurse, and counselors) to discuss your child’s condition and specific needs.
- Provide medical documentation and a detailed plan for managing lupus at school.
- Ensure an Individualized Education Plan (IEP) or 504 Plan is in place, outlining accommodations such as extra time for assignments, rest periods, or modified physical activities.
Organize Supplies and Medication: Create a checklist of necessary school supplies, including any medical items like sunscreen, medications, and a water bottle.
Develop a system for storing and administering medication during school hours, ensuring the school nurse is aware of the schedule and dosage.
Plan for Health and Wellness: Establish a daily routine that includes time for rest, balanced meals, and hydration. Diet directly affects the state and severity of Lupus so make sure you and your doctors have found a diet that works for you and not against you! Check out our article on “Diet and Lupus” to learn more about how diet affects the severity and symptoms of those with Lupus.
Encourage regular exercise tailored to your child’s energy levels and physical capabilities. Again make sure to speak with your doctor to find a plan that works for you. Exercise can look like walking, swimming, dancing, weight lifting, etc.
Prioritize sleep to help manage fatigue and overall health. Managing School Days
Monitor Symptoms: Teach your child to recognize the signs of a lupus flare and communicate them to teachers or the school nurse.
Use a symptom diary to track daily health and identify patterns or triggers. Check out our resource library for free medical binder symptom trackers. We have free printables for symptoms, potential triggers, diet, and more that allow you to root out hidden triggers, keep a log for your doctor, and stay organized!
Balance Academics and Health: Break down assignments into manageable chunks to prevent overexertion.
Use tools like planners or apps to keep track of homework, tests, and medical appointments.
Encourage open communication with teachers about workload and deadlines, especially during flare-ups.
Foster a Supportive Environment: Educate classmates and friends about lupus to build understanding and support.
Encourage participation in school activities while being mindful of your child’s limitations.
Develop a support network with other families facing similar challenges through local support groups or online communities. There are many online support groups, Facebook groups, and discord channels for those with Lupus to create communities of support.
Self-Care and Mental Health
- Emphasize Self-Care:
Teach your child stress-management techniques such as deep breathing, mindfulness, or journaling.
Encourage hobbies and activities that bring joy and relaxation. - Seek Professional Support:
Consider counseling or therapy to help your child cope with the emotional aspects of living with lupus.
Utilize school resources like counselors or psychologists for additional support. Advocating for Your Child
Be Proactive: Being proactive will always beat being reactive. This could look like:
Regularly review and update your childās health and education plans with school staff.
Advocate for necessary accommodations and support to ensure your childās success.
Starting a new school year with lupus may require extra preparation and vigilance, but students can thrive academically and socially. By fostering open communication, planning meticulously, and prioritizing health and wellness, students with lupus can navigate the school year with confidence and resilience. Remember, you are not alone in this journeyāreach out for support and advocate for the best possible environment for your child to succeed.
