Dysautonomia, specifically Postural Orthostatic Tachycardia Syndrome (POTS), is a complex and often misunderstood condition affecting the autonomic nervous system. This condition can significantly impact a person’s quality of life, causing debilitating symptoms. Interestingly, some individuals experience an improvement in symptoms over time and may even “grow out of” the condition. In this blog post, we will explore what dysautonomia and POTS are, the potential for symptom improvement, and the factors that may contribute to a better prognosis.
When I was diagnosed with POTS my neurologist pulled out a chart and pointed to the very end of the right side. She told me I had severe POTS and with my diagnosis, she would have to send me to a dysautonomia center for further treatment due to my diagnosis of severe dysautonomia. But she followed that up with “Most people grow out of their POTS” to bring some relief to the news. I wish I had asked then if I hadn’t been shocked by the diagnosis how you can grow out of POTS. But today we will answer that question if you are also curious.
What is Dysautonomia?
Dysautonomia refers to a group of disorders that affect the autonomic nervous system (ANS). The ANS controls involuntary bodily functions such as heart rate, blood pressure, digestion, and temperature regulation. When the ANS malfunctions, it can lead to a wide range of symptoms and health issues.
What is POTS?
Postural Orthostatic Tachycardia Syndrome (POTS) is a specific type of dysautonomia characterized by an excessive increase in heart rate when moving from a lying down to a standing up position. This condition primarily affects young women, though it can occur in men and women of all ages.
Make sure you also check out our other Dysautonomia-related post that will be linked below!
Common Symptoms of POTS:
- Rapid Heart Rate: An increase in heart rate of 30 beats per minute (bpm) or more within 10 minutes of standing.
- Dizziness and Lightheadedness: Especially upon standing up.
- Fatigue: Persistent and often severe.
- Fainting: Also known as syncope.
- Brain Fog: Difficulty concentrating and cognitive impairment.
- Nausea and Gastrointestinal Issues: Including bloating and abdominal pain.
- Exercise Intolerance: Difficulty performing physical activities.
Can You Grow Out of POTS?
One of the more intriguing aspects of POTS is that some individuals experience significant symptom improvement over time, leading to the perception that they have “grown out of” the condition. This phenomenon is particularly observed in teenagers and young adults.
Factors Contributing to Symptom Improvement:
- Age and Maturation: Many individuals diagnosed with POTS during adolescence or young adulthood find that their symptoms improve as they get older. This improvement may be linked to the natural maturation of the autonomic nervous system and cardiovascular system.
- Physical Conditioning: Regular exercise, particularly cardiovascular conditioning, has been shown to improve POTS symptoms. A structured exercise program can help enhance blood volume, improve cardiovascular fitness, and reduce heart rate fluctuations.
- Medications and Treatments: Proper medical management, including medications to control heart rate and blood pressure, can help stabilize symptoms. Over time, some patients may find they need less medication or can discontinue it altogether.
- Lifestyle Adjustments: Changes in diet, hydration, and lifestyle can have a significant impact on POTS symptoms. Increasing salt and fluid intake, wearing compression garments, and avoiding prolonged standing can all contribute to symptom relief.
- Autonomic Function Improvement: In some cases, the autonomic nervous system may improve its function over time, leading to a natural reduction in symptoms.
Personal Stories and Experiences
Many individuals with POTS share their personal stories of symptom improvement. These anecdotes often highlight the importance of persistence, support, and comprehensive care. While not everyone will experience complete remission, many can achieve a significant reduction in symptoms, allowing them to lead more normal and fulfilling lives by working with healthcare providers.
Managing Expectations
It is important to note that while some people may experience substantial improvement, POTS remains a chronic condition for many. Each person’s experience with POTS is unique, and what works for one individual may not work for another. Open communication with healthcare providers, staying informed about new treatments, and being proactive in managing the condition are crucial steps for anyone living with POTS.
POTS is a challenging and often debilitating form of dysautonomia that can significantly impact daily life. However, the potential for symptom improvement and even “growing out of” the condition offers hope for many. Through a combination of medical treatment, lifestyle adjustments, and physical conditioning, individuals with POTS can manage their symptoms and improve their quality of life. If you or someone you know is living with POTS, it’s essential to seek support, stay informed, and remain hopeful for better days ahead.
